Las personas con discapacidad intelectual ante el covid-19: una revisión sistemática


Contenido principal del artículo

Patricia Solís García


El modelo actual de comprensión de la discapacidad intelectual se refiere a esta como un estado de funcionamiento que variará significativamente en función de los apoyos que recibe la persona. La actual pandemia ha situado a este colectivo en una situación de especial vulnerabilidad, limitando sus apoyos y repercutiendo negativamente en su calidad de vida. Las investigaciones parecen haber obviado las perspectivas de estas personas por lo que el objetivo general de esta revisión es analizar las publicaciones que aborden el impacto de la situación de pandemia en personas con discapacidad intelectual. Se plantea una búsqueda en Web of Science y un análisis siguiendo el método PRISMA. Se concluye que el COVID-19 ha tenido importantes repercusiones en la salud física y mental de las personas con discapacidad intelectual y ha agudizado las desigualdades existentes en torno a estas personas y sus familias.

intellectual disability, covid-19, vulnerability, systematic review, pandemic

Amor, Antonio Manuel, P. Navas, M. Á.Verdugo y M. Crespo. “Perceptions of People with Intellectual and Developmental Disabilities about Covid‐19 in Spain: A Cross‐Sectional Study”. Journal of Intellectual Disability Research 65, núm. 5 (2021): 381-396. https://doi.org/10.1111/jir.12821.

Arons, Melissa M., Kelly M. Hatfield, Sujan C. Reddy, Anne Kimball, Allison James, Jesica R. Jacobs, Joanne Taylor, Kevin Spicer, Ana C. Bardossy, Lisa P. Oakley et al. “Presymptomatic SARS-CoV-2 Infections and Transmission in a Skilled Nursing Facility”. New England Journal of Medicine 382, núm. 22 (2020): 2081-2090. https://doi.org/10.1056/NEJMoa2008457.

Asociación Americana de Discapacidades Intelectuales y del Desarrollo. Discapacidad intelectual. Definición, clasificación sistemas de apoyo. Madrid: Alianza Editorial, 2011.

Courtenay, Ken. Covid-19: Challenges for People with Intellectual Disability. BMJ, 369 (2020): 1609. https://doi.org/10.1136/bmj.m1609.

Courtenay, Ken, y Bhathika Perera. “Covid-19 and People with Intellectual Disability: Impacts of a Pandemic”. Irish Journal of Psychological Medicine 37, núm. 3 (2020): 231-236. https://doi.org/10.1017/ipm.2020.45.

Embregts, Petri JCM, Kim J. H. M. van den Bogaard, Noud Frielink, Moniek A. C. Voermans, Marloes Thalen y Andrew Jahoda. “A thematic analysis into the experiences of people with a mild intellectual disability during the covid-19 lockdown period”, International Journal of Developmental Disabilities (2020) https://doi.org/10.1080/20473869.2020.1827214.

Epstein, Sabrina, Jessica Campanile, Caroline Cerilli, Prateek Gajwani, Varshini Varadaraj y Bonnielin K Swenor. “New obstacles and widening gaps: A qualitative study of the effects of the covid-19 pandemic on US Adults with disabilities”. Disability and Health Journal 4, núm. 3 (2021): 101103. https://doi.org/10.1016/j.dhjo.2021.101103.

Gacek, Michal, y Lukasz Krzywoszanski. “Symptoms of Anxiety and Depression in Students With Developmental Disabilities During COVID-19 Lockdown in Poland”. Frontiers in Psychiatry 12, núm. 319 (2021): 1-6. https://doi.org/10.3389/fpsyt.2021.576867.

Ijezie, Ogochukwu Ann, Hilary Izuchukwu Okagbue, Olufemi Adebari Oloyede, Vanessa Heaslip, Philip Davies y Jane Healy. “Coronavirus Disease 2019 (COVID‐19) and Individuals with Intellectual and Developmental Disabilities in Nigeria”. Journal of Public Affairs (2021): e2601. https://doi.org/10.1002/pa.2601.

Kim, Min, Jaehee Yi, Sang Mi Jung, Shinyeong Hwang y Jimin Sung. “A Qualitative Study on Parents’ Concerns about Adult Children with Intellectual Disabilities amid the COVID‐19 Pandemic in South Korea”. Journal of Applied Research in Intellectual Disabilities 34, núm. 4 (2021): 1145-1155. https://doi.org/10.1111/jar.12875.

Kirby, Tony. “Evidence Mounts on the Disproportionate Effect of COVID-19 on Ethnic Minorities”. The Lancet Respiratory Medicine, 8, núm. 6 (2020): 547-548. https://doi.org/10.1016/S2213-2600(20)30228-9.

Lake, Johanna K., Patrick Jachyra, Tiziana Volpe, Yona Lunsky, Carly Magnacca, Amanda Marcinkiewicz y Yani Hamdani. “The Wellbeing and Mental Health Care Experiences of Adults with Intellectual and Developmental Disabilities During COVID-19”. Journal of Mental Health Research in Intellectual Disabilities 4, núm. 3 (2021): 1-16. https://doi.org/10.1080/19315864.2021.1892890.

McKenzie, Karen, George C. Murray y Rachel Martin. “‘It’s Been Adapted rather than Impacted’: A Qualitative Evaluation of the Impact of Covid‐19 Restrictions on the Positive Behavioural Support of People with an Intellectual Disability and/or Autism”. Journal of Applied Research in Intellectual Disabilities 34, núm. 4 (2021): 1089-1097. https://doi.org/10.1111/jar.12859.

Moher, David, Alessandro Liberati, Jennifer Tetzlaff, Douglas G. Altman y The PRISMA Group. “Preferred Reporting Items for Systematic Reviews and MetaAnalyses: The PRISMA State¬ment”. PLoS Medicine 6, núm. 7 (2009): e1000097. https://doi.org/10.1371/journal.pmed.1000097.

Murray, George, Karen McKenzie, Rachel Martin y Aja Murray. “The Impact of COVID‐19 Restrictions in the United Kingdom on the Positive Behavioural Support of People with an Intellectual Disability”. British Journal of Learning Disabilities 49, núm. 2, (2021): 138-144. https://doi.org/10.1111/bld.12379.

Nankervis, Karen, y Jeffrey Chan. “Applying the CRPD to People With Intellectual and Developmental Disability With Behaviors of Concern During COVID‐19”. Journal of Policy and Practice in Intellectual Disabilities, núm. 18 (2021): 197-202. https://doi.org/10.1111/jppi.12374.

Neece, Cameron, Laura Lee McIntyre y Rachel Fenning. “Examining the Impact of COVID‐19 in Ethnically Diverse Families with Young Children with Intellectual and Developmental Disabilities”. Journal of Intellectual Disability Research 64, núm. 10 (2020): 739-749. https://doi.org/10.1111/jir.12769.

Paulauskaite, Laura, Ola Farris, Helen M. Spencer y Angela Hassiotis. “My Son can’t Socially Distance or Wear a Mask: How Families of Preschool Children with Severe Developmental Delays and Challenging Behavior Experienced the Covid-19 Pandemic”. Journal of Mental Health Research in Intellectual Disabilities 14, núm. 2 (2021): 225-236. https://doi.org/10.1080/19315864.2021.1874578.

Perestelo-Pérez, Lilisbeth. “Standards on How to Develop and Report Systematic Reviews in Psychology and Health”. International Journal of Clinical and Health Psychology 13, núm. 1 (2013): 49-57. https://doi.org/10.1016/S1697-2600(13)70007-3.

Qiao, Jie. “What are the Risks of COVID-19 Infection in Pregnant Women?”. The Lancet 395, núm. 10226 (2020): 760-762. https://doi.org/10.1016/S0140-6736(20)30365-2.

Rauf, Bushra, Hafsa Sheikh, Hassan Majid, Ashok Roy y Rani Pathania. “COVID-19-related Prescribing Challenge in Intellectual Disability”. BJPsych Open 7, núm. 2 (2021): e66. https://doi.org/10.1192/bjo.2021.26.

Samboma, Thabile. “Leaving no One Behind: Intellectual Disability During COVID-19 in Africa”. International Social Work 64, núm. 2 (2021): 265-269. https://doi.org/10.1177/0020872820967413.

Sanders, Jessica, Seth Keller y Bhooma R. Aravamuthan. “Caring for Individuals With Intellectual and Developmental Disabilities in the COVID-19 Crisis”. Neurology: Clinical Practice 11, núm. 2 (2021): 174-178. https://doi.org/10.1212/CPJ.0000000000000886.

Schormans, Ann Fudge, Sue Hutton, Marissa Blake, Kory Earle y Kevin John Head. “Social Isolation Continued: Covid-19 Shines a Light on What Self-Advocates Know Too Well”. Qualitative Social Work 20, núm. 1-2 (2021): 83-89. https://doi.org/10.1177/1473325020981755.

Schuengel, Carlo, J. Tummers, P. J. C. M. Embregts y G. L. Leusink. “Impact of the Initial Response to Covid‐19 on Long‐term Care for People with Intellectual Disability: An Interrupted Time Series Analysis of Incident Reports”. Journal of Intellectual Disability Research 64, núm. 11 (2020). https://doi.org/10.1111/jir.12778.

Theis, Nicola, Natalie Campbell, Julie De Leeuw, Marie Owen y Kimberley C. Schenke. “The Effects of COVID-19 Restrictions on Physical Activity and Mental Health of Children and Young Adults with Physical and/or Intellectual Disabilities”. Disability and Health Journal 14, núm. 3 (2021): 101064. https://doi.org/10.1016/j.dhjo.2021.101064.

Tromans, Sam, Michael Kinney, Verity Chester, Regi Alexander, Ashok Roy, Josemir W. Sander, Harry Dudson y Rohit Shankar. “Priority Concerns for People with Intellectual and Developmental Disabilities during the COVID-19 Pandemic”, BJPsych Open 6, (2020): e128. https://doi.org/10.1192/bjo.2020.122.

Turk, Margaret A., y Suzanne McDermott. “The COVID-19 pandemic and people with disability”. Disability and Health Journal 13, núm.3 (2020): 100944. https://doi.org/10.1016/j.dhjo.2020.100944.

Villani, Emanuele Rocco, Davide Liborio Vetrano, Cecilia Damiano, Antonella Di Paola, Aurora Maria Ulgiati, Lynn Martin, John P. Hirdes, Laura Fratiglioni, Roberto Bernabei, Graziano Onder y Angelo Carfì. “Impact of COVID-19-Related Lockdown on Psychosocial, Cognitive, and Functional Well-Being in Adults With Down Syndrome”, Frontiers in Psychiatry 11 (2020): 1150. https://doi.org/10.3389/fpsyt.2020.578686.

Wieting, Jelte, Virginie Laurier, Grégoire Benvegnu, Christine Poitou, Pauline Faucher, Héléna Mosbah, Gwenaelle Diene, Graziella Pinto, Laura González Briceño, Christine Merrien, Ana Camarena Toyos, Emilie Montastier, Maithé Tauber y Fabien Mourre. “Behavioural Change in Prader–Willi Syndrome during Covid‐19 Pandemic”. Journal of Intellectual Disability Research 65, núm. 7 (2021): 609-616. https://doi.org/10.1111/jir.12831.

World Health Organization. Mental health and psychosocial considerations during the COVID-19 outbreak, 18 March 2020 (No. WHO/2019-nCoV/MentalHealth/2020.1). https://apps.who.int/iris/bitstream/handle/10665/331490/WHO-2019-nCoV-MentalHealth-2020.1-eng.pdf.

World Health Organization. WHO coronavirus disease (COVID-19) dashboard (WHO, 2020). https://covid19.who.int/region/euro/country/pl.

Detalles del artículo

Solís García, P. (2022). Las personas con discapacidad intelectual ante el covid-19: una revisión sistemática. En-Claves Del Pensamiento, (31), e500. https://doi.org/10.46530/ecdp.v0i31.500

Creative Commons License

Esta obra está bajo una licencia internacional Creative Commons Atribución-NoComercial 4.0.